Unexpected Visit

In my last post I talked about this crazy mystery sickness I was having.. Nausea, vomiting, and basically coughing up my lungs was the big issue. Well the coughing part ended up being RSV and I finally got rid of it but the stomach issues are still haunting me.  UGH. I had been throwing up maybe once every day or every other day but was constantly nauseous.  Every week I would go to the doctor they would either give me a new medication for nausea or change up the way I was taking it… NOTHING helped. With all the medications I’m on already, this had to be one of the most frustrating things for me…  I just wanted to find something that helped.

Well this past Sunday I had hit rock bottom. I had been throwing up all day long (food, liquid, medicine). My body hadn’t had a break in days.  My body ached with absolutely no energy. Anything and everything would trigger it. My mom would offer me water and just thinking about drinking water would make me gag. Like what in the world? Let me tell you… It was AWFUL. If you know me, it takes a lot for anyone to get me to the ER because I never leave happy. I somehow talked myself into it Sunday because I was desperate for help. So thats were my mom and I ended up.

We pull up and every single seat in the ER waiting room is full. Y’all, people were even laying on the floor! WTH!?!? All I could think about was how long of a night it was going to be.  With my immune system being so weak, I stayed in the car while my mom went and checked me in (You weren’t going to catch me sitting on the ground for nothin). She comes right back out and said they were cleaning my room now and I should be called back soon. WAHOO!  (Sometimes being a transplant patient works in your favor….. sometimes…) I got called right back but was put in isolation.  Nurses come right in and draw blood and help get me situated.  Nausea medicine and Morphine were given to me through the IV while we waited for results to come back. Oh my goodness. The Morphine I think is was saved me.  My body was finally given a break after a month of constant vomiting and belly aches… I finally was able to relax and just rest.

After about an hour or so the blood results finally had come back. My hemoglobin was down to 4.4. Just 5 days prior it was up to 9! This was very concerning to the doctor so being admitted was the only option (That is when I reminded myself of why I hated going to the ER ). At this point I was still feeling great from the morphine and was so frustrated that I had to stay but I thought for sure they were going to fix me and it would all be worth it in the end.  The transporters finally came in and said they were taking me to a room on the 12th floor.  That put a huge smile on my face and took a huge weight off my shoulders. That is were all my favorite nurses worked so I knew I would be taken care of.  We get up to the room and it happens to be the same exact room I was first admitted to last May when this whole journey started. HOW CRAZY!?  Also, it was the last room open in the WHOLE hospital. Even more crazy.

Its about 3am by the time I get into my room and situated.  They take my vitals and my blood pressure is extremely low. That never happens to me! So they have to closely monitor it all night (in other words I was not going to be sleeping that night. ugh).  I finally began my blood transfusion and started feeling a bit better. By morning I had way more energy and my hemoglobin was back up to 9.9! That was very exiting. The doctor was still really confused and wanted to run a few test on my numbers to see why it had dropped so much so I wouldn’t be going home until the next day. I was able to eat two meals without throwing up which was great for me. By Monday night the nausea had come back. I tried different medications which didn’t work for me but was able to sleep through it.

Tuesday morning a lot of my numbers had dropped but my hemoglobin had stayed the same so the doctor was happy with that. I was able to go home Tuesday but my stomach issue was never solved. I ended up throwing up that night. Ugh. I’m Just glad to be out of the hospital. Thursday, I go back to the doctor and am going to get this stomach issue solved!

During my hospital stay I lost a sweet friend to cancer.  She was such a happy little girl to be around. It made me reflect on my life this past year and remind me of how blessed I am to be where I’m at today.  She fought her hardest and so will I.  Gods plan is the best plan, you just have to believe!

-XO Kara

I’m back……

I know so many of you have been waiting so patiently for my next blog post.. I’m sorry it has taken so long but to be honest I felt like whatever I posted would just be a whole rant of me complaining about stupid things going on.  But then I was like okay no that is so far from true because there are so many amazing things that this past month has me grateful for… So here is a little bit of both.

I had been so excited for this Christmas break because all my friends I’ve been dying to see would finally be home and my life wouldn’t be so dang boring.. Well literally the day everyone got home things went down hill (duh because it’s my life and thats just the way it works).  I had a doctor appointment that day and my numbers ended up being a little low so to be safe a shot was required to help my body recover those numbers quickly. Also, they FINALLY took me off the awful steroid that made me look like a literal ballon that was about to pop and my virus medicine because it was gone for good! Two medicines less a day, Praise God!  Little did I know all that would make things get a little crazy… Just that next day my body aches where awful, I had no appetite (SO not like me lol), no energy and honestly just felt awful. By the end of the week everything had gotten worse. I wasn’t eating and was completely nauseous. Something had to be done.  I ended up spending the next two days at the hospital receiving blood transfusions so I would hopefully be able to enjoy my Christmas with the family. And I did! I was feeling good a few days after and then things just got rough again. I caught an awful something that they can’t figure out.  I’m still trying to it fight off.. I sound like a dying horse even with the 8 new medicines and breathing treatments they have me on. I’ve had multiple test done, X-rays, nose swabs and its still a mystery. Thankfully, my appetite is finally slowly coming back and the vomiting is down to a minimum.  I have never been very picky with food, but this past month has been such a challenge for me. If I even smelt something that didn’t sound good to me at the moment, I was running to the bathroom. Could of been my favorite food, just not right then. I will have to say, I haven’t worked my stomach muscles this much in a LONG time (it’s all about finding the good in the bad y’all)!  Right now my bed is my worst enemy because we have gotten way to close this past month… Im at the point where I want to be anywhere but my bed (a year ago I would of never imagined myself saying that lol). Anyways, as many challenges as I’ve had this past month and as hard as it is so accept this setback, I still am fighting my hardest to get better.  Things are finally looking up again!

So heres all the amazing things that have happened this past month! As sick as I have felt, I have had my amazing family by my side to take care of me AT HOME. Gosh, I don’t think anyone understands how thankful I am to be able to spend my days in my home and not in the hospital. The few days I did have to spend there, I was gifted units of blood from someone who had donated. Such a simple act of kindness, and saves peoples lives like mine! I had an amazing Christmas with my family as always.. My sisters came to visit and I actually got to go visit them (secrets kept from the Dr. since I’m not suppose to travel further than 50 miles from the hospital…. oh well). We always have so much fun together no matter how I’m feeling, which makes its definitely worth breaking the rules to see them.  I just recently got approved to take an online class this Spring Semester!  WAHOOO. Even though its only one class, I’m so excited to be a student again.  One step closer to being ‘Me’.  Although I didn’t get to see/do everything I wished to do with my friends this break, I’m so thankful for the time I did get to spend with them. Thank you for always encouraging me and supporting me no matter what!

There is so much I’m missing I’m sure because its been so long.. I promise I will be better about keeping y’all updated! Good news or bad, there is always something to be grateful for and I need to continue to remind myself of that. God is so good to me and has a perfect future planned ahead!

-XO Kara